P.073 Mapping a national Duchenne muscular dystrophy registry to the International Classification of Functioning, Disability, and Health

Background: Duchenne muscular dystrophy (DMD) is an X-linked disease that causes progressive muscle wasting. The Canadian Neuromuscular Disease Registry (CNDR) DMD subset collects data focused on body structure and function. Our objective to develop a broader dataset including the priorities of those living with in accordance International Classification Functioning, Disability, Health (ICF) – framework for describing health functions developed by World Organization. Methods: Clinically relevant ICF categories were identified reviewed two independent committees patients six parent representatives. Delphi approach was used narrow core set representative DMD, which will be mapped CNDR-DMD subset. Results: With full result expected conference, mapping identify collection four domains functioning disability: structures, activities at level individual, participation all areas life, environmental factors. Conclusions: can priorities. Broadening foster future research include outcome measures important families affected DMD.